Ashley is spending more time out of bed and in her wheel chair. While that might not sound significant it is. When you spend most of your time laying down it can be painful to sit up for extended periods. While each day is different with regard to what Ashley can tolerate the result is a net gain over time.
Who would have guessed that we would still be having 80+ degree days with abundant sunshine with which Ashley can be outside watching sailboats on Lake Michigan.
Ashley is moving her legs now more than ever so that will help slow muscle loss. Her right arm has been more rigid lately while her left arm is quite limber. Early on it was the opposite for Ashley’s arms.
While the technology folks have not yet narrowed down a device with which Ashley can make consistent responses there was one suggestion that is showing some promise. One of the therapist suggested using a deck of playing cards. Hold up two different cards and ask Ashley to touch an identified card. It was not flawless, but the vast majority of the time Ashley would grab the right card. At this point in her recovery a major issue is the rigidity she encounters when moving. At times she is unable to move her arm and hand directly to the card, but eventually she gets it where she wants it. At other times she is able to reach directly to a desired spot grab on to it and pull it toward her.
One thing that came out of the card exercise was some black jack playing. Ashley did quite well. She would raise her hand for a hit, or hold still or slide her hand along the table to stay. We played several times over the weekend and she thoroughly enjoyed it; smiling broadly when risky hit delivered her a winning hand.
We are reaching a critical point in Ashley’s rehabilitation. The therapists set up goals for Ashley and have been aggressive. We all have been hoping for quick progress, but that has not been the case. While Ashley is scheduled to be in Chicago until mid-November they are evaluating her progress weekly to determine if this is the best course of action for her at this time. That is not to say that Ashley will not continue therapy. She most certainly will. What we need to determine is whether she can come home and continue it on an outpatient basis, or if she will need to be inpatient at a facility in Fort Wayne for a time.
Please pray that Ashley is able to make significant progress in therapy. We know she is working hard. She is confronting battles none of us can fathom; brain signals that do not consistently travel properly which controls both logic and motor function. She experiences pain which may be physical or neurological but she cannot tell us. Your prayers have brought both Ashley and the rest of our family this far and we are ever grateful. We thank you for the prayers you continue to offer up on our behalf.
Monday, October 8, 2007
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8 comments:
Ashley--
Hey sweetheart! It sounds like you're doing well! We should have told them the best way to get to a college student is through card playing in the first place!! :)
I'm still trying to get to you, Ash. My schedule has been really weird and nothing has worked out, but I promise you that I've been working on it. I can't wait to see you. And oh, my, Ash, we have so much to get you caught up on with Celebrity Useless Information! haha
I love you, Ashley Marie, and you are always in my thoughts, in my heart, and in my prayer.
XoXo,
Emily
~Ash~
Hello dearest!! Once again it sounds like you're doing wonderfully! I know you may be really frustrated right now, but just know that you're getting there and soon we won't be able to shut you up!!! hahaha
I came across this poem when I was writing a speech a few years back, I don't know if I've ever shared it with you, but I always seem to go back to it when I get frustrated. It's called "Don't Quit"
"When things go wrong as they sometimes will, when the road you're trudging seems all uphill, When you're feeling low and the stress is high, and you want to smile, but you have to sigh. When worries are getting you down a bit, by all means pray and don't you quit!!! Success is failure turned upside down, God's hidden gift in the clouds of doubt. You may never know how close you are, it may be near when it seems so far. So trust in the Lord when you're hardest hit, because its when things go wrong that YOU MUST NOT QUIT!!!"
I hope this helps!!
Love you!
Rach
Hey Ashley!
It sounds like once again you have been working so hard! Maybe the next time you could show me how to play blackjack...if we ever went to Vegas I'd be broke! haha! Cards was never my strong point as you know from the euchre parties! I am also so happy that the weather has been so nice and you get to go outside! I know how much you love your tan! Ash, I think about you all the time throughout my day. There is always something I see or hear or do that makes me think of you! Once again I am sending you the biggest hug over the internet that one could possibly send! I love you Ash! You and your family are always in my prayers! XOXOXOXOXOXOXOXO
~HOLLY~
Hi Ashley,
I've already told Angela that she has to have another Kool-aid stand so you will have spare change to challenge your mom and dad to a real game of blackjack. It sounds like they are on the right track with using the cards in your therapy. I hope it helps you express yourself more easily. We love you honey. We'll be up as soon as we can and then you can teach me some poker. Love, Aunt Lynn, Uncle Stan and Angela
Hey Ashley, sounds like you're good at blackjack. As always, I have been praying for you every night. We think about you always.
Love,
Cousin Paul
ashley! kelly hogan and i are hopefully coming out to chicago soon!! we all miss you here at school. by the way that picture of us from move-in day made it into the smc yearbook. I started laughing when I saw it because I remember how hot it was that day.
xoxo olivia
Hi Ashley! It was so great to see you, and I'm really glad to hear that you can play cards now! Next time I come visit, I can't wait to play- hehe.
We're having a Grey's anatomy section event on Thursday night, so I'll definately be thinking of you when it comes on!
In the meantime, keep up the good work & keep on practicing those card skills!
My thoughts & prayers are always with you (and your family) Ashley!! See you soon!
~Courtney :)
Ashley,
Be careful playing cards with a Harrington, I remember when I was younger (long ago and far away)the parents (your grandparents) playing cards. My mom always said cheating came from Grandma Mardquart and I know it is Rachel's genes. She wins at Phase 10 ALL THE TIME!!!! and Uno. I think she stacks the deck. Regardless keep them in line.
Woke up in this morning to 42degress, so much for the sunny georgia days, it was perfect at the lake when we were up for a visit last week. When you venture out enjoy the sunshine and remember the snow is around the corner.
You've been in our prayers and think of you often. Rachel missed seeing you guys this summer and tubing with Austin. Take care.
Love ya,
Cousin Ruth and the crew in Georgia
xoxo
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