Monday, November 17, 2008

November 17th

Ashley had one of those week where she was improving in noticeable ways last week.

In therapy they do assisted walking with her (one person supports her while two others pattern her feet after Ashley initiates the step) and time how long it takes to cross the large room there. On Friday Ashley took a minute off her time. Her last timed walk before that... Just two days ago on Wednesday!

Ashley was featured in an article of Fort Wayne Living Magazine's November issue. It summarized the timeline of Ashley's treatment and progress and her on going efforts to recover from ADEM. There were several pictures of her at therapy and the story also spoke of the effort being undertaken by members of our parish to raise funds for a wheelchair accessible van for Ashley. Once I figure out how to post the article to the site I will get it up. The photos in this posting are from that article.

On Saturday Ashley tried out a motorized wheelchair in a gym. We weren't sure what, if anything, to expect especially since the joystick control was on the right side and Ashley favors her left. When we placed her right hand on the control she didn't move, but she reached her left hand over and pulled on her right so it did move. The net result was mostly in circles, but there was one time she was moving straight (keep in mind that we have this chair moving very slowly) toward a wall and moved the joystick to do a full 180 degree turn without any assistance. We plan on trying the chair again in the future to see how Ashley does.

On Sunday our church provided the Sacrament of the Anointing of the Sick. It was an emotional experience for Ashley, and us. We know that faith has been a major contributor to Ashley's recovery. The Sacrament helped us to reflect on all of the improvements Ashley has made in the last 16 months and we are thankful for that. We also have the continued hope that Ashley will continue to improve and reach a full recovery.

Ashley meet with her physiatrist (rehabilitation doctor) today and he was very pleased with Ashley's progress over the last several months. He thinks her therapy regimen is right on target.

We have big plans for this weekend. One of Ashley's college friends, Kelly, who was also a student sports manager with Ashley has made arrangements for us to go to the Notre Dame-Syracuse game. We will be touring the field and locker room prior to the game. We will also have an opportunity to meet with several of Ashley's classmates and friends while we are on campus Saturday. We are looking forward to it and are thankful for all the folks at Notre Dame that made this possible.
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8 comments:

Anonymous said...

Ashley

You are looking great. next weekend should be a lot of fun for you. even if it is Notre Dame - I am a Purdue Guy. Have a great time and we hope to see you soon.

Love Dave and Kathy

Anonymous said...

Hey Ashley and family,
Wow! Lots happening since I sent my last note! You sure have been up to alot, and lots of good things to say the least!! We're so glad that your trip to camp was a memorable one for the whole family!! I'm glad you all enjoyed yourselves and were able to get out of the Fort for a short vacation!! the Pettys sound like amazing people and so does their camp!!
I guess your legs are listening to all of our prayers! They seem to be getting you to where you are wanting to go at a faster speed these days!! You must have pretty terrific therapists and I bet they just Love You to pieces!!! What terrific news Ashley!!! You'll be dancing up a storm in no time!!! Keep those prayers coming people!!!
Hey!!! Do they play Raschal Flatts during your therapy sessions, some of their faster songs may just make you want to move your legs even quicker!!!!! Move over Austin here comes Ashley! Go Ashley Go!!!
St Vincent's is an amazing church,(even tho I am partial to St. Charles) hey!!! They give me a Paycheck every other Friday!! ha Ha!
I am so glad you were able to attend the special mass at St Vincent. I know how important FAITH is to your entire family!!!
I'm not sure how people go about their daily lives without God being a part of their day!!!
They really are missing out aren't they!! We may not understand God's plan for us but we know His plan is Always Perfect !!! We continue to Trust and pray!!!
Our family is getting real hungry for spaghetti, and we heard that there is going to be a special dinner in your honor!! Well..... I guess we aren't going to miss that one!!! There are alot of people that Love you dearly sweet Ashley.... and we are hoping that your Christmas dream comes true and that that new van will soon be parked in your driveway!!! We have been back and forth to Chicago three times in the past few weeks! Several uncles on my side have passed away, and being the close knit family we are we want to be there to console the family! Both of my uncles were terrific men!!! Holly just received her tickets to Italy in the mail today!!She is getting very excited to say the least!!! What an experience this will be!! A pilgrimage, and an experience of a life time!!! She will be praying for all of you at the most holiest of places that you can be sure of!!! Well now that I have taken up your entire blog space ... I will bid you farewell for now and say sweet dreams and lots of hugs and kisses for your entire family!!! Claudia Schnurr and gang!

Anonymous said...

Hey, sweetheart!

I remember what I was going to say!---
I read the LIVING article on Saturday, the day before I came over to see you! You celebrity, you! :D!

It was so wonderful to see you. I miss you so much. And what a great visit it was. I'm so sorry it couldn't last longer. You looked so good, and how I have missed that smile of yours! Oo, and so pretty, all dressed up for mass. My family and I attended the 5 o'clock on Saturday night and during the Anointing, I thought of you and prayed for you. I ended with the usual, of course: WALK! TALK! EAT! :) hehe

I will be home in a week. Here's to getting together again! And during these next couple of weeks, Ashley, I will be thanking God for you. I am so thankful for you, for being a part of your life, and for you being in mine!

Have a wonderful week, Ash! I love you!

XoXo,

Emily*

Anonymous said...

oh ash! i have tears in my eyes right now. i cannot wait to see you and that's an understatement! you are doing so well and know that i am thinking about you all the time. i showed my kids a picture of you, the one when some of us came to visit you at northwestern over christmas break last year. they are all praying for you now! you have come so far since then and continue to be such an inspiration for all of us as you make so many improvements! ash, i love you so much and cannot wait to come see you and show you pictures and tell you all my crazy stories! you mean so much to me and i am always praying for you! love,
adrienne

Anonymous said...

Hi Ashley,
We were going to head your way today, and then 9 inches of snow fell on us. We are so disappointed, we miss you all. We know you have so much to show us and that you are making great strides.
School was on a delay this morning and I got stuck plowing us out. It was quite embarassing. The neighbors were blowing snow and I was blowing a mixture of snow and leaves...oops, forgot to rake. Oh well, the jobs done now! We will see you soon. Love to all, Aunt Lynn, Uncle Stan and Angela P.S. tell Austin to call Alex and ask him about the slippery roads here.

Anonymous said...

Hey Ashley!
I'm so happy to hear about all of your recent accomplishments! You seem to continue to make significant strides with walking, talking, and eating. It must be encouraging to get so much positive feedback from the therapists too! Keep working hard! I can't tell you how excited I am to see you this weekend!! Get some rest now because it's going to be a busy weekend! :)
Love, Kelly

Anonymous said...

Hi Ashley and family,
Did you guys get SNOW? Valpo sure did. (Must be preparing for the holiday season:)
Your dad mentioned the motorized wheelchair. I know for sure I'd be going around in circles, no doubt about it!
I love the pics from the camp.What an awesome place. Looks like they sure kept you busy.
Love,
A. Kathy and U. Dave xx

Anonymous said...

Ashley,

It's so great to hear about all of your progress. I am sorry that I missed you this weekend when you were in South Bend. I hope you had a great time!

I miss you, and I think of you often.

Love,
Theresa