Monday, November 30, 2009

November 30

One of the most common topics over the Thanksgiving weekend from family and friends alike was, “When are we going to see an updated posting?” There is no excuse for the extended hiatus. It has been a month and a half. I hope the Ashley blog following faithful will pardon me. Of course after reading the latest with Ashley I’m sure the wait will have been worth it.

Ashley has kept busy and has been working hard.

She has been standing on her own with increased frequency (not holding anything). She has exceeded six minutes at home.

In therapy she has walked three lengths of the parallel bars with the only assistance being to turn around to begin the next stretch.

She has walked with a therapist just holding a hand for support.

In the past couple of weeks Ashley has increased the control she has over muscle groups. She has shrugged her shoulders on request and, no doubt in her bid to get back on the dance floor soon, she can shake that grove thing!

Another important advance has been with drinking liquids. Ashley is gaining more control over her jaw and lips and is drinking more each week. She still needs the tube for sufficient hydration and to get her few remaining meds and vitamins. We don't know when, but it is obvious now that the tube will be going away.

While we are still waiting on those first words Ashley is communicating more and more via her computer, spelling and glancing at objects. While it can take awhile to communicate we are moving from simple necessities to more quality of live conversations with Ashley. She is able to tell us in more detail what she wants, how she is feeling and even comment on discussions we are having. She has certainly come a long way.

Often times we lose focus getting a meal ready and forget what is important. Whenever we are at the kitchen table ready to eat Ashley looks up at the cross over the doorway to remind us to say grace prior to the meal. This young lady is focused on her faith and she is seeing that her prayers along with the multitude coming from all of you are being answered.

We were able to make a trip over to Notre Dame and Saint Marys earlier this month and had splendid weather and an opportunity to see several of her classmates and friends. Although Navy spoiled the day for the football team Ashley had a great time visiting.

A late birthday gift for Ashley was attending the Trans Siberian Orchestra concert in Fort Wayne. We were in the forth row center. What a show!

Austin was home for thanksgiving and Ashley loved spending time with him. In addition to talking about his course work and ‘life-in-a-day’ of an IU student he talked about his videographer duties with the football team. He traveled with the team to Penn State and was on the field filming with over 100,000 screaming fans surrounding him. Ashley had the opportunity to get up close to watch Austin work (that's him with the video camera) during the Oaken Bucket game between Indiana and Purdue a couple of weekends ago.

Some of Ashley’s high school friends visited over the holiday weekend adding to the special time she had.

We have a lot be thankful for. As we prepare for Christmas we wish all of you to have a most blessed season. From Ashley and all of us!

9 comments:

Anonymous said...

Ashley,

It is so good to see an update; like others, I was getting antsy to read up on what marvelous things you are accomplishing! Your progress has been tremendous, and I am so very impressed with the tenacity and strength with which you continue to work towards your goals! I grow in faith each time your Dad posts a message.
I know my prayers (and those of many, many others) are being answered, all in His good time.

May this Advent Season continue to bring you more and greater miracles!

Trish (FL)
Romans 12:12

Unknown said...

Hi Ashley
We ave been hearing about all your progress from Stan's Daughter Kelly - they came to dinner a eek ago when they were down and, of course, you were part of the conversation as to all you have been progressing. Kathy and I will be in Atlanta over the Christmas Holiday - all of us will be praying for you as always. Love you - and - keep up the good work
Uncle Dave

Autn Lynn said...

Jeff, Mary, Ashley and Austin: Just want to tell you how much I love you. Aunt Lynn

Anonymous said...

Ashley, As always you are an inspiration to all!!!! I know you will continue to work hard and keep getting stronger every day. I hope during Christmas break we can come for a visit during your therapy session. I can't wait to see you. Love Aunt Beth, Uncle Craig, Alex, and Jessica

Emily said...

Ash--

Hey, love! It was so great to see you over Thanksgiving break! I hadn't seen you in such a long time. Your smile brightens up everything; it's amazing! I love the chats we have! Oh, and shakin' your bum-bum was pretty spectacular, too!

You know, if there was a limit on exclamation points, I would have exceeded a long time ago... :) But you make me so happy and so excited, they are a MUST! Your spirit and strength are something amazing to behold. Your progress has been fantastic. How do we not get all giggly and smiley and happy about these things?!

I know you're on God's time right now, but He and I have had some chats. Mainly it's me telling Him to bring you all the way back to us NOW (followed up with Walk! Talk! Eat!), and He normally responds with (His usual response to everything I talk to Him about): "Patience."

You know I'm absolutely no good with patience, but for you, Ashley, I can do patience! Especially when you are showing all of us you can stand by yourself, walk the bars, drink liquids, swallow food, and communicate your requests!

You and your family are always in my prayers. You continue to be my inspiration, someone I look up to every day. Keep up the amazing work and that fantastic smile.

I love you!

XoXo,

Emily*

Anonymous said...

Hi Ashley and All,
Trans Siberian dudes, Wow! And was good to see Austin, too - even if it was his behind :)
Have a Merry Christmas and a Great New Year -- It's on its way!
Love,
A. Kathy xx

Anonymous said...

Hi Ashley and All,
Trans Siberian dudes, Wow! And was good to see Austin, too - even if it was his behind :)
Have a Merry Christmas and a Great New Year -- It's on its way!
Love,
A. Kathy xx

Unknown said...

Hi everyone:

We are heading out in the Morning for Atlanta and wanted to wish you all a Merry Christmas. We promise that Kathy and I will be up to see you after the first of the year. Can't believe it is almost 2010.
Talked to Stan yesterday - he said he was on the way to pick up Lynn and Angela for the holidays in Florida - I almost hing up when he said that it was cold - 60 - we are freezing and watching it snow. Oh Well -
See you soon - GOD Bless you all.

Uncle Dave

fuzzywaters said...

Hi Ashley

I hope you and your family are having a wonderful holiday season. It is amazing to see your progress. I cant wait for the first words post on the blog. I hope our winter season is fast, as I know it is not an easy time to get around. The concert looked great, I wanted to see them when they were here. Our Prayers are with you Ashley,, and may God give you a great sense of peace and security, With his love and ours we wish you a Merry Christmas and a Happy New Year. May Peace be with You, Chris and Helen